Deep brain stimulation before the age of 18 in patients with childhood-onset dyskinetic movement disorders - a German registry for quality assurance

Deep brain stimulation before the age of 18 in patients with childhood-onset dyskinetic movement disorders - a German registry for quality assurance - GEPESTIM

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00006778

Enrollment

200

Registered

2014-12-01

Start date

2013-10-14

Completion date

Unknown

Last updated

2026-03-30

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G80.3 G24.1 G23.0 E79.1 G24.2 G24.9 G24.8

Interventions

Group 1: With the aid of the registry data of patients with a childhood-onset dyskinetic movement disorder who received DBS before the age of 18 years should be systematically collected encompassing i

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: - Diagnosis of childhood-onset dystonia - Deep brain stimulation before the age of 18

Exclusion criteria

Exclusion criteria: - No diagnosis of childhood-onset dystonia - Deep brain stimulation after the age of 18

Design outcomes

Primary

Measure	Time frame
Change of Burke-Fahn-Marsden Dystonia Rating Scale before and after Deep Brain Stimulation	—

Secondary

Measure	Time frame
Effects of DBS on - dystonia - chorea - spasticity - motor function - pain - memory - affection / mood - quality of life - cognition - attention - speech complications / adverse events	—

Countries

Austria, Germany, Switzerland

Contacts

Public ContactAnne Koy

Kinderklinik, Universitätsklinikum Köln

anne.koy@uk-koeln.de022147842156

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Apr 4, 2026