Quality of life / statisfaction of patients with chronic diseases with respect to their spiritual needs
Conditions
Interventions
Group 1: Patients and staff of Palliative Medical Institutions will be interviewed.
The study consists of three steps.
Step 1
-> Inquiry/Survey: Patients
-> Anonymous communication of results: Team
Sponsors
Lehrstuhl für PalliativmedizinÄrztliche Direktorin Klinik für PalliativmedizinUniversitätsklinikum Freiburg
Eligibility
Sex/Gender
All
Age
18 Years to 65 Years
Inclusion criteria
Inclusion criteria: - Active patient contact in the appropriate facility - Age between 18 - 65 - Written consent to participate in the survey
Exclusion criteria
Exclusion criteria: - Manifest mental illness from the ICD 10 - Symptom groups F0 - F5
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The experience of the patients (m / f) themselves is the primary interest and objective goal criterion. For patients: - Questionnaires are filled out at the beginning of the hospital stay and at the time of inpatient discharge (after two weeks at the latest) - Used standardized questionnaire instruments: >Spiritual needs (SpNQ) >Quality of life / satisfaction (POS + BMLSS) >Spiritual well-being (FACIT-Sp) >Attunement (ASTS, English version POMS) >Perception of stress (PSS) >Symptom Scale (VAS) >Perceived support / being cared for by the team (single-item, only in the post-questionnaire) >Socio-demographic data | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. How does a specific (voluntary) training program, that includes practical and mediative exercise and educational interest, influence motivation and job satisfaction? 2. Can the training program impart/develop employee competences, that result directly in increased quality of life/satisfaction of the treated patient (independent of the basic disease) and in the support of spiritual needs? 3. How does the therapeutic team deal with the spiritual needs articulated by the patient (documented by standardized questionnaire, SpNQ) and which reactions take place in order to respond to them? 4. Does the therapeutic relationship change through the sensibility for and the knowledge of the patients spiritual needs and is this change perceptible to the patient in a positive sense? 5. Can the basic ability to respond to a patients spiritual need (documented in step 1) be increased by the training program in terms of skills aquisition on the employees part? 6. Which aspects of spirituality are associated with higher life satisfaction, self-efficacy expectancy and a lower perception of stress and distance in the therapeutic relationship on the employees part? For Employees: - The questionnaires are filled out at the beginning of each 6-month observation phase as well as the end. - Used standardized questionnaire instruments: >Living and team satisfaction >Work Engagement (POS + BMLSS) >Self-efficacy expectation (SWE) >Perception of stress (PSS) >Distancing in the therapeutic relationship (Cool down index) >Generative altruism (GAIS) >Expression of spirituality (ASP or SpREUK-P) >Responsibility for spiritual needs (individual items) >Socio-demographic data - Qualitative interviews of employees: 1. How did the team handle the patients spiritual needs? 2. What specific reactions were carried out in terms of support? 3. How did the patient respond to the offers of the team / the individual person? 4. Did the therapeutic relationship change? | — |
Countries
Germany
Contacts
Public ContactArndt Büssing
Institut für Integrative MedizinFakultät für Gesundheit der Universität Witten/Herdecke
Outcome results
None listed