orphan lung diseases D86.0 J84.1 J98.4 J45.9
Conditions
Interventions
Group 1: Patients will have a current anamnesis and medical history. Furthermore pulmonary function tests will be done and patients will have to fill in questionairs. After this patiens will have to c
Sponsors
Pneumologisches Forschungsinsitut an der LungenClinic Grosshansdorf
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: inclusion criteria for patients with orphan lung disesase: - proven lung disesase, e.g. idiopathic pulmonary fibrosis, sarcoidosis, lymphangioleiomyomatosis inclusion criteria for healthy control subjects - normal pulmonary function test - no smoking within the last 5 years and less than 5 packyears in total - no anamnestic history for lung diseases
Exclusion criteria
Exclusion criteria: exclusion criteria for all subjects: - no significant respiratory tract infection in the last 4 weeks - impairment of physical activity because of extrapulmonary diseases (e.g. clinically significant athrosis of the hip or knees or peripheral artery disease of the legs)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Parameters of physical activity (e.g. physical activity level, steps per day) using the Sensewear Armband device over a wearing period of 7 days | — |
Secondary
| Measure | Time frame |
|---|---|
| Parameter of questionaires (e.g. quality of life) and pulmonary function tests (e.g. FVC, FEV1) at the timepoint of the visit day | — |
Countries
Germany
Contacts
Public ContactAnne-Marie Kirsten
Pneumologisches Forschungsinstitut an der LungenClinic Grosshandorf
Outcome results
None listed