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Care of patients with a lung transplantation - a study

Care of patients with a lung transplantation - a study - ELD-BeoNet-registry

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00005821
Enrollment
420
Registered
2014-04-23
Start date
2016-01-04
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

J84

Interventions

Group 1: target group 1: transplanted patients Survey with questions conerning quality of life and use of services takes place every three months. In addition, data from the electronic patient reco

Sponsors

Bundesministerium für Bildung und Forschung Dienstsitz Berlin
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to 100 Years

Inclusion criteria

Inclusion criteria: ICD-10 J84, over 18 years, german-speaking person

Exclusion criteria

Exclusion criteria: no ICD-10 J84, not over 18 years, not a german-speaking person

Design outcomes

Primary

MeasureTime frame
The patient will be recruted in the doctors office or in the clinic. Every three months the patients will be fill out a questionnaire. the questionnaire includes questions on their current state of health, their quality of life (EuroQol), their using behaviour of service offers and questions of their current job situation. In addition, data will be collected from the electronic patient record. This data will be merged with the primary data. This study is a long-term study.

Secondary

MeasureTime frame
Besides the health-related aspects their also will be considered economic aspects. Cost analysis will be a special and important second outcome parameter. The necessary data will be collected every three months. Furthermore data from the electronic patient record will be collected every month. This data will be merged with the primary data. This study is a long-term study.

Countries

Germany

Contacts

Public ContactHeidrun Lingner

Medizinische Hochschule Hannover

lingner.heidrun@mh-hannover.de0511 532931

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026