G71.0
Conditions
Interventions
Group 1: Intervention using the mobile application "DMD Guide" with registered Duchenne patients and their relatives owning an Android smartphone (supply of health information)
Group 2: Control Group:
Sponsors
Universitätsklinikum Freiburg
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Parents of patients with Duchenne Muscular Dystrophy from the German-Austrian patient registry (https://www.treat-nmd.de/register/) Patients with Duchenne Muscular Dystrophy from the German-Austrian registry Access to an internet-enabled device (PC, laptop, tablet, smartphone, etc.) to fill in the online questionnaires For the second and third survey: a Android smartphone
Exclusion criteria
Exclusion criteria: Respondent is not able to understand the German language sufficiently Limitations of vision, so that no questionnaire can be read
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Pre-test post-test difference of the self-efficacy of patients and their relatives after intervention with the mobile guidebook application (questionnaire survey) | — |
Secondary
| Measure | Time frame |
|---|---|
| Use of utility services (such as physician inquiries about topics from the guidebook or the regularity of examinations) Number of installations and usability (e.g. usage of the advanced features, appointments using the app) | — |
Countries
Austria, Germany
Contacts
Public ContactMartin;Michael Boeker;Braun
Universitätsklinikum Freiburg, Department für Medizinische Biometrie und Medizinische Informatik, Institut für Medizinische Biometrie und Statistik;Universitätsklinikum Freiburg, Department für Medizinische Biometrie und Medizinische Informatik, Institut für Medizinische Biometrie und Statistik
Outcome results
None listed