DMD-Carriers: Detection of Cardiomyopathy through Cardiac MRI and Echocardiography

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00004539

Enrollment

Registered

2012-11-30

Start date

2013-02-07

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Carrier of Duchenne Muscular Dystrophy I42.9

Interventions

Group 1: Following the protocol, the physical exam is structured by a form documenting standardised tests like e.g. MRC muscular functional test. The apparative diagnostics include ECG, 24ECG, 6 Minut

Eligibility

Sex/Gender

Female

Age

14 Years to No maximum

Inclusion criteria

Inclusion criteria: Confirmed positive analysis for carrier status of Duchenne Muscular Dystrophy. Minimum age 14 years.

Exclusion criteria

Exclusion criteria: Lack of confirmed positive analysis for carrier status of Duchenne Muscular Dystrophy. Age under 14 years. Any psychological or physical condition implying a contraindication to any of the examinations included in the trial protocol.

Design outcomes

Primary

Measure	Time frame
Identification of Duchenne carriers´specific changes/abnormalities in Cardiac MRI and echocardiography.	—

Secondary

Measure	Time frame
Developement of SOPs regarding the tested methods in this group of people, using the data from this trial.	—

Countries

Germany

Contacts

Public ContactAnne Schönecker

Universitätsklinikum Essen Zentrum für Kinder- und Jugendmedizin Klinik III, Bereich Kinderkardiologie

anne.schoenecker@uk-essen.de0201 723 84278

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026