Health-related quality of life and psychosocial distress in patients with myeloproliferative neoplasms: a prospective study

Health-related quality of life and psychosocial distress in patients with myeloproliferative neoplasms: a prospective study - MPN-HRQOL

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00003384

Enrollment

Registered

2011-12-07

Start date

2011-07-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

D45 D47.3

Interventions

Group 1: Cross-sectional assessment of the described patient-reported outcomes (with one measuring point)

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: diagnosis MPN (WHO criteria 2008), ECOG < 3

Exclusion criteria

Exclusion criteria: palliative treatment, ECOG > 2

Design outcomes

Primary

Measure	Time frame
Aspects of the HRQoL in patients with myeloproliferative neoplasms (e.g., general health, vitality) are assessed with the Medical Outcomes Study 36-Item Short Form Survey (SF-36), Multidimensional Fatigue Inventory (MFI), EORTC QLQ C30 (European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Core 30) (Fatigue-Subscale) as cross-sectional assessment.	—

Secondary

Measure	Time frame
psychosocial distress (depressive symtoms, anxiety, psychosocial burdens), assessed with the Patient Health Questionnaire (PHQ-D) (cross-sectional)	—

Countries

Germany

Contacts

Public ContactDaniel Lipka

Division of Epigenomics and Cancer Risk Factors (C010) German Cancer Research Center

d.lipka@Dkfz-Heidelberg.de+49-6221-424325

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026