J44 C34
Conditions
Interventions
None listed
Sponsors
Institut für Palliative Care (ipac) e.V.
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Patients with the following criteria will be eligible for this study. The inclusion criteria will be: 1)diagnosis of advanced disease as defined as follows: Lung cancer: Primary lung cancer at all stages (small cell lung cancer (SCLC) and non-small cell lung cancer (NSCLC)); COPD: stage III or IV of the GOLD classification (Global Initiative for Obstructive Lung Disease), which include the airflow limitation measured by spirometry FEV1 < 50%, FEV1/FVC < 0.7 (FEV1: forced expiratory volume in one second; FVC: forced vital capacity) and symptoms such as more severe breathlessness, reduced exercise capacity and repeated exacerbations; 2)age = 18 years. Disease orientated therapies (chemotherapy, radiotherapy, surgery) can be ongoing. Carers are people who are close related to the patient and chosen by the patient.
Exclusion criteria
Exclusion criteria: (1) lack of capacity to give informant consent; (2) lack of capacity to be interviewed;(3)cognitive impairment (clinical judgment by the principal investigator)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Description of experiences of crises in patients with advanced chronic obstructive pulmonary disease or lung cancer and their caregivers | — |
Secondary
| Measure | Time frame |
|---|---|
| Demographic data (age, gender, nationality, marital status, children, caregivers, education, smoking status, technical equipment (e.g. internet use)); disease data (disease, stage, comorbidities, lung function and Hb, disease-specific therapies, other therapies (i.e. pain medication), function by Karnofsky Performance Status, number of hospital admissions in the last 12 months) | — |
Countries
Germany
Contacts
Public ContactSteffen Simon
Institut für Palliative Care (ipac) e.V.
Outcome results
None listed