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Supportive Care Needs of Primary Caregivers of Children with Retinoblastoma

Supportive Care Needs of Primary Caregivers of Children with Retinoblastoma

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
ChiCTR
Registry ID
ChiCTR2600128184
Enrollment
Unknown
Registered
2026-07-15
Start date
2026-07-22
Completion date
Unknown
Last updated
2026-07-20

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Retinoblastoma

Interventions

Observation group:None

Sponsors

Shanghai General Hospital
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to No maximum

Inclusion criteria

Inclusion criteria: 1. Parent caregivers of children diagnosed with retinoblastoma who assume primary responsibility for the child's care; 2. Aged >= 18 years; 3. Able to understand and communicate adequately, provide informed consent, and voluntarily participate in this study by signing an informed consent form.

Exclusion criteria

Exclusion criteria: 1. Children with other severe ocular diseases or major systemic illnesses that may substantially affect caregivers' assessment of their caregiving experience; 2. Caregivers with psychiatric disorders or other serious illnesses.

Design outcomes

Primary

MeasureTime frame
Supportive care needs scores;General information questionnaire;Care burden scores;—

Countries

China

Contacts

Public ContactJian Chang

Shanghai General Hospital

changjiancn@sjtu.edu.cn+86 21 36126197

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Jul 23, 2026