Leukemia
Conditions
Interventions
Intervention group:Participants in the experimental group received a family narrative intervention program for adolescents with leukemia in addition to routine care. This program was a structured psyc
Sponsors
Fujian medical university
Eligibility
Sex/Gender
All
Age
10 Years to 19 Years
Inclusion criteria
Inclusion criteria: Inclusion criteria for patients: 1.Age: 10–19 years; 2.Clinically diagnosed with leukemia; 3.Were aware of their diagnosis and disease condition and voluntarily agreed to participate in this study; 4.Parental consent for participation in this study. Inclusion criteria for primary caregivers: 1. Have a kinship with the patient; 2. Undertake the main care tasks for the patient. When there is more than one caregiver, the patient shall designate one caregiver. 3. Age >=18 years old; 4. Be aware of the patient's disease diagnosis, condition and treatment; 5. Possess complete language expression and comprehension abilities; 6. Voluntarily participate in this study under the principle of informed consent.
Exclusion criteria
Exclusion criteria: Exclusion criteria for patients: 1.Expected survival time of less than two weeks; 2.Presence of consciousness disorders, dementia, or a history of psychiatric disorders; 3.Presence of communication or expressive impairments; 4.Participation in other psychological intervention programs; 5.Severe dysfunction of major organs (e.g., heart, brain, or kidney) or other serious complications. Exclusion criteria for primary caregivers: 1.Presence of psychiatric disorders or cognitive impairments; 2.Communication difficulties or inability to clearly express personal opinions; 3.Participation in other psychological intervention programs.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Family resilience (Measured using the Family Resilience Assessment Scale); | — |
Secondary
| Measure | Time frame |
|---|---|
| Anxiety (Measured using the Generalized Anxiety Disorder-7);Depression (Measured using the Patient Health Questionnaire-9 items);Care burden (Measured using the Zarit Caregiver Burden Interview);Hope (Measured using the Herth Hope Index);Patient and caregiver's feelings after intervention (Obtained through qualitative interviews); | — |
Countries
China
Contacts
Public ContactHu Rong
School of nursing, Fujian medical university
Outcome results
None listed