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The Relationship Between e-Health Literacy, Fear of Disease Progression, and Adherence Among Primary Caregivers of Children with Congenital Hydronephrosis and Urolithiasis

The Relationship Between e-Health Literacy, Fear of Disease Progression, and Adherence Among Primary Caregivers of Children with Congenital Hydronephrosis and Urolithiasis

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
ChiCTR
Registry ID
ChiCTR2600124705
Enrollment
Unknown
Registered
2026-05-15
Start date
2026-05-15
Completion date
Unknown
Last updated
2026-05-18

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

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Interventions

Observation group:None

Sponsors

Shandong Provincial Hospital
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. The child's age ranges from 0 to 14 years; 2. The primary caregiver is the child's legal guardian or a family member who assumes the main responsibility for daily care and medical decision-making during the child's hospitalization, and has fulfilled this role for over 6 months; 3. The caregiver possesses basic reading and comprehension abilities, enabling independent and accurate completion of the questionnaire survey; 4. The caregiver is fully informed of the study's objectives and voluntarily signs a written informed consent form.

Exclusion criteria

Exclusion criteria: 1. The child is in a critical rescue period with extremely unstable vital signs; 2. The child has severe congenital cognitive impairment, intellectual developmental delay, or neurological disorders; 3. The caregiver has a clear history of mental illness or is currently in a state of severe psychological stress; 4. The caregiver suffers from severe visual, hearing impairment, or cognitive dysfunction and cannot cooperate with data collection; 5. Employed professional caregivers, short-term nannies, or temporarily substituted distant relatives; 6. Questionnaires with missing values exceeding 20% or showing obvious logical inconsistencies.

Design outcomes

Primary

MeasureTime frame
eHealth literacy;Follow-up adherence;Fear of disease progression;

Countries

China

Contacts

Public ContactWangshuqin

Shandong Provincial Hospital

2861171838@qq.com+86 531 68776359

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: May 22, 2026