Hemophilic Arthropathy
Conditions
Interventions
Study Group:None
Sponsors
Peking Union Medical College Hospital
Eligibility
Sex/Gender
All
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: 1. Aged >= 18 years old; the primary caregiver must be the one who has provided the longest cumulative care time in the past 6 months and is an unpaid informal caregiver. 2. The patient has a confirmed diagnosis of hemophilic arthropathy. 3. No visual impairment, and capable of understanding and completing the questionnaires independently. 4. Both the patient and their primary caregiver are able to understand the study protocol, voluntarily agree to participate in this study, and provide written informed consent.
Exclusion criteria
Exclusion criteria: 1. Have experienced major life changes or stressful life events within the past 3 months (e.g., death of a family member, divorce, unemployment or career failure, etc.). 2. The primary caregiver is also a patient with hemophilia.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Caregiver Burnout;Caregiving Burden; | — |
Secondary
| Measure | Time frame |
|---|---|
| Influencing factors of caregiving burden and burnout (demographics, disease characteristics, social support, etc.); | — |
Countries
China
Contacts
Public ContactChenqian Liu
Peking Union Medical College Hospital
Outcome results
None listed