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Survey on treatment patterns and patient experience among myeloproliferative neoplasm patients

Survey on treatment patterns and patient experience among myeloproliferative neoplasm patients

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
ChiCTR
Registry ID
ChiCTR2600122697
Enrollment
Unknown
Registered
2026-04-16
Start date
2026-04-29
Completion date
Unknown
Last updated
2026-04-20

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Myeloproliferative Neoplasms (Essential Thrombocythemia, Polycythemia Vera)

Interventions

Hematology Physicians:None

Sponsors

Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to No maximum

Inclusion criteria

Inclusion criteria: Hematology Physicians: 1. Having experience in managing MPN patients within the past 12 months, defined as having diagnosed and treated at least 8 MPN patients in the past 12 months, including at least 2 patients with PV and at least 4 patients with ET. 2. All participants must provide informed consent or read through the Participant Info Letter. Patients: 1. Aged =18 years ; 2. Diagnosed with PV or ET by clinic visit; 3. Patients who have received treatment; 4. All subjects must provide informed consent or read through the Participant Info Letter.

Exclusion criteria

Exclusion criteria: Patients are currently receiving Merck/MSD therapy or therapy with drugs in the same class.

Design outcomes

Primary

MeasureTime frame
Disease Characteristics of ET/PV Patients;Treatment Patterns in ET/PV Patients;Diagnostic Journey and Decision-Making Factors;

Secondary

MeasureTime frame
Disease Burden and Quality of Life;Unmet Clinical Needs;

Countries

China

Contacts

Public ContactZhang Lei

Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences

ec@ihcams.ac.cn+86 22 2390 9095

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Apr 23, 2026