Haemophilia?
Conditions
Interventions
Intervention Group:Self-Management Program for Patients with Hemophilic Arthropathy
Control group:Carry out routine care
Sponsors
Peking Union Medical College Hospital
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: 1.Patients clinically diagnosed with hemophilic osteoarthropathy; 2.Age >= 18 years; 3. Normal communication and comprehension abilities, with clear consciousness; 4. Ability to independently cooperate with follow-up arrangements via telephone, WeChat, etc., after discharge; 5. Patients and their families were informed and voluntarily agreed to participate in this study.
Exclusion criteria
Exclusion criteria: 1. Individuals with hearing, visual, or cognitive impairments, or those with psychiatric disorders; 2.Patients with severe physical illnesses that limit activity, such as severe cardiopulmonary insufficiency or malignant hypertension; 3. Patients who withdrew from the study midway due to personal reasons.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Self-care ability;Functional of joint; | — |
Secondary
| Measure | Time frame |
|---|---|
| Quality of life;Disease outcome: pain, falls, number of bleeding episodes, etc.; | — |
Countries
China
Contacts
Public ContactYan Zhang
Peking Union Medical College Hospital
Outcome results
None listed