Retinoblastoma
Conditions
Interventions
Trial group:Based on routine ward care, an intervention program titled the "Precision Empowerment Model for Families of Children with Retinoblastoma" will be implemented. Upon hospital admission, rese
Control group:The control group will receive standard inpatient treatment and nursing care. Upon admission, nurses will introduce the ward environment, hospitalization precautions, and provide informa
Sponsors
Ninth People's Hospital, Shanghai Jiao Tong University School of Medicine
Eligibility
Sex/Gender
All
Age
20 Years to 60 Years
Inclusion criteria
Inclusion criteria: 1. Has a child diagnosed with retinoblastoma (RB) who is under 12 years of age, with a diagnosis made within the past year, and who is currently undergoing chemotherapy. 2. Is aged 18 to 60 years inclusive, resides with the child, and serves as the child’s primary caregiver. 3. Is conscious, possesses adequate reading, comprehension, and expressive abilities, and is able to independently complete questionnaires and participate in the study. 4. Owns a smartphone and is able to communicate normally via WeChat.
Exclusion criteria
Exclusion criteria: 1. History of major family bereavement or acute psychological trauma within the past six months; 2.History of psychiatric illness, depression, or severe cognitive impairment; 3. Concurrent malignancy or chronic systemic disease in the paediatric patient; 4.Discontinuation of treatment or death during the study period.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Comprehensive Needs of Cancer Patient Carers; | — |
Secondary
| Measure | Time frame |
|---|---|
| Family hardship;Disease-related energy expenditure;Depression;Anxiety;Stress;Self-efficacy;Self-esteem;Caregiver competence;Family functioning index;Knowledge and skills;Satisfaction; | — |
Countries
China
Contacts
Public ContactZeng Changjuan
Ninth People's Hospital, Shanghai Jiao Tong University School of Medicine
Outcome results
None listed