Haemophilia
Conditions
Interventions
Remote exercise training group:Complete an 8-week individualized exercise training program online
Outpatient Sports Training Group:Complete an 8-week individualized exercise training program in the outpatient setting
Sponsors
Peking Union Medical College Hospital
Eligibility
Sex/Gender
Male
Age
4 Years to 60 Years
Inclusion criteria
Inclusion criteria: 1. Meets the diagnostic criteria for hemophilia established by the Thrombosis and Hemostasis Group of the Chinese Medical Association of Hematology. 2. Patients diagnosed with type A hemophilia-related arthritis. 3.Age range: 4 - 60 years old. (For patients under 18 years old in the remote exercise training group, the training is conducted under the supervision of their parents.)
Exclusion criteria
Exclusion criteria: 1. Combined with severe organic lesions of important organs such as the heart, lungs, liver and kidneys; 2. Presence of mental disorders and language disorders; 3. Poor compliance.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The Hemophilia Joint Health Score 2.1; | — |
Secondary
| Measure | Time frame |
|---|---|
| Five-Level EuroQol Five-Dimensional Questionnaire;Haemophilia Activities List;Anxiety and Depression Scale (Generalized Anxiety Disorder-7, GAD-7; Patient Health Questionnaire-9, PHQ-9);International Physical Activity Questionnaire; | — |
Countries
China
Contacts
Public ContactChen Lixia
Peking Union Medical College Hospital
Outcome results
None listed