Research on the Construction of Family Health Management Program for Children with Epilepsy Based on Patient Journey Map

Status

Active, not recruiting

Phases

Early Phase 1

Study type

Interventional

Source

ChiCTR

Registry ID

ChiCTR2500111429

Enrollment

Unknown

Registered

2025-10-31

Start date

2025-11-01

Completion date

Unknown

Last updated

2025-11-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Epilepsy

Interventions

Control group:Routine care

Experimental group:Routine care and Family Health Management Plan

Eligibility

Sex/Gender

All

Age

18 Years to 60 Years

Inclusion criteria

Inclusion criteria: 1.Primary caregivers of children diagnosed with epilepsy and with a disease duration of >= 2 years; 2.Undertake the main task of caring for the child and provide care to the child without compensation; 3.Continuous care time > 6 months; 4.The primary caregiver is aged >=18 years old, has knowledge of the patient's disease, and participates in the patient's medical decision-making.

Exclusion criteria

Exclusion criteria: 1.Caregivers with a history of mental illness; 2.Major stressful events have occurred in the family within the past 3 months (such as the loss of a loved one, divorce, etc.);

Design outcomes

Primary

Measure	Time frame
Caring ability;	—

Countries

China

Contacts

Public ContactZhang shasha

Children's Hospital of Soochow University

1207754399@qq.com+86 181 1451 2778

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Feb 4, 2026