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A multicenter study on school functioning in Pediatric Patients with Hirschsprung disease

A multicenter study on school functioning in Pediatric Patients with Hirschsprung disease

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
ChiCTR
Registry ID
ChiCTR2500106313
Enrollment
Unknown
Registered
2025-07-22
Start date
2024-12-03
Completion date
Unknown
Last updated
2025-08-18

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Hirschsprung disease

Interventions

Healthy group:None

Sponsors

The University of Hong Kong-Shenzhen Hospital
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. Children from 4 tertiary hospitals in multiple centers from 2012.1 to 2017.12 who were pathologically diagnosed with Hirschsprung's disease and completed radical resection of Hirschsprung's Colon; 2. Currently primary and secondary school students.

Exclusion criteria

Exclusion criteria: 1. Reject participants; 2. Children with trisomy 21, autism, cerebral palsy and other children who affect children's intelligence and communication skills; 3. The child is a kindergarten child or a college student; 4. Parents who are unable to answer the questionnaire by phone due to education level or other reasons for communication/understanding barriers; 5. The questionnaire is missing and the questions are incomplete.

Design outcomes

Primary

MeasureTime frame
School functioning via PedsQL 4.0 Generic Core Scales (PedsQLTM 4.0);Delaware Bullying Victimization Scale Score;

Secondary

MeasureTime frame
Fecal incontinence score(Rintala scale);

Countries

China

Contacts

Public ContactHuang Haibo

The University of Hong Kong-Shenzhen Hospital

huanghb9@hku-szh.org+86 755 86913333

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Feb 4, 2026