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The Cohort Study on Duchenne and Becker Muscular Dystrophy in China

The Cohort Study on Duchenne and Becker Muscular Dystrophy in China

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
ChiCTR
Registry ID
ChiCTR2500101000
Enrollment
Unknown
Registered
2025-04-17
Start date
2024-12-15
Completion date
Unknown
Last updated
2025-04-21

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

The Duchenne and Becker Muscular Dyatrophy

Interventions

Observation group:None

Sponsors

The First Medical Center of Chinese PLA General Hospital
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: The inclusion criteria for this study are specifically for Duchenne muscular dystrophy (Duchenne) and Becker muscular dystrophy (Becker), and participation is limited to male patients. For female carriers, asymptomatic carriers are also included in the study to get a complete picture of the impact and carriage of the gene.

Exclusion criteria

Exclusion criteria: Other types or causes of myopathy.

Design outcomes

Primary

MeasureTime frame
6 minutes walking distance;North Star Ambulatory Assessment score;Supine-to-stand time;10-meter walking time;Spinogram;Blood routine examination;Biochemical assays;Bone metabolism;Sex Hormone Six Tests;—

Secondary

MeasureTime frame
Pediatric Upper Limb (PUL) 2.0 score;Cardiac magnetic resonance;Echocardiogram;Pulmonary function test;Bone mineral density;—

Countries

China

Contacts

Public ContactShiwen Wu

The First Medical Center of Chinese PLA General Hospital

wu_shiwen@outlook.com+86 139 1023 8117

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Feb 4, 2026