Pemphigus
Conditions
Interventions
Experimental Group:Routine care + narrative nursing intervention
Control group:Routine care:Skin care to keep the skin clean
Washing damaged mucosal areas to reduce the risk of infection
Monitoring the effect and side effects of drugs, and taking medicine on time and dose
Pain management, such as local anesthetics or oral analgesics, to relieve the patients suffering
Provide high protein digestible foods
To teach the basic knowledge of pemphigus to patients and their families, and improve the self-management ability of patients.
Sponsors
Union Hospital, Tongji Medical College, Huazhong University of Science and Technology
Eligibility
Sex/Gender
All
Age
18 Years to 80 Years
Inclusion criteria
Inclusion criteria: 1. diagnosed with pemphigus, 2. aged >18 to 80 years, 3. able to communicate effectively, 4. patients voluntarily participated and signed informed consent.
Exclusion criteria
Exclusion criteria: 1.severe cardiac, hepatic and renal dysfunction, 2.complicated with other skin diseases and pregnant or lactating women, 3.speech and comprehension disorders, and (4) psychiatric history.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Distress Tolerance Scale, DTS;Generalize Anxiety Disorder Scale, GAD-7;Patient Health Questionnaire, PHQ-9;Dermatology Life Quality Index, DLQI; | — |
Countries
China
Contacts
Public ContactLiu Yonghua
Union Hospital, Tongji Medical College, Huazhong University of Science and Technology
Outcome results
None listed