Fragile X syndrome
Conditions
Interventions
Control group(Group B):intervention as usual
Treatment group(Group A):intervention as usual + e-CST(elearning caregiver skills training)
Sponsors
The Third Affiliated Hospital Sun Yat-sen University
Eligibility
Sex/Gender
All
Age
2 Years to 9 Years
Inclusion criteria
Inclusion criteria: 1.Children aged 2-9 years old with FXS can come to the hospital for on-site assessment, have good caregiver compliance, and are willing to cooperate with randomization and follow-up; 2. The caregiver wants to improve the child-rearing skills and is committed to participating in the whole process of the study, agrees to complete the questionnaire and corresponding assessment required for the study according to the real situation, and agrees to follow up after the study is completed; 3. The caregiver agrees to record the parent-child interaction.
Exclusion criteria
Exclusion criteria: 1.Children suffer from severe visual impairment and severe dysaudia.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Joint Engagement Rating Inventory(JERI); | — |
Secondary
| Measure | Time frame |
|---|---|
| Caregiver Knowledge and Skills Test(CKST);Parent Sense of Competence(PSOC);Parent Target Problem(PTP);Child and Adolescent Scale of Participation(CASP);Adaptive Behavior Assessment System-Second Edition(ABAS-II);The Repetitive Behavior Scale-Revised(RBS-R);Sensory Profile-2(SP-2);Social Responsiveness Scale, Second Edition(SRS-2);Family Empowerment Scale (FES);Parenting Stress Index-Short Form(PSI-SF);Autism Treatment Evaluation Checklist(ATEC);Clinical Global Impression(CGI);Course Satisfaction Survey?Focus Group; | — |
Countries
China
Contacts
Public ContactYipei Xing
The Third Affiliated Hospital Sun Yat-sen University
Outcome results
None listed