Decompensated cirrhosis
Conditions
Interventions
Observation group:None
Sponsors
The First Affiliated Hospital of Army Medical University
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: 1.Quantitative study: (1) Diagnosed with decompensated cirrhosis according to the Consensus on Clinical Diagnosis and Treatment of Liver Cirrhosis in China (2023); (2) Age >= 18 years old; (3) Have clear consciousness, be informed of the diagnosis, possess independent communication skills, and sign the informed consent form; (4) Have good compliance and are able to follow the study procedures. 2.Qualitative study: (1) Patients: Inclusion criteria are the same as those for the quantitative study. (2) Patient caregivers: 1) Age >= 18 years old; 2) Live with the patient and provide primary care (at least 7 hours per day); 3) Are conscious and able to communicate in language; 4)Give informed consent and voluntarily participate in the study. (3) Medical staff: 1) Obtain the nurse/physician practice certificate; 2) Have been working in liver disease for more than 5 year; 3) Have good language and communication skills; 4) Give informed consent and voluntarily participate in the study.
Exclusion criteria
Exclusion criteria: 1.Quantitative study: (1) Patients with liver cancer or other malignant tumors; (2) Serious diseases affecting various important organs; (3) Serious cognitive or mental disorders; (4) Other situations where patients are unable or unwilling to cooperate and thus cannot participate in the trial. 2.Qualitative study: (1) Patients: Exclusion criteria are the same as those for the quantitative study. (2) Caregivers for patients: 1) With serious mental illness, hearing impairment, speech disorders, unable to participate in or cooperate with the study; 2) With serious chronic diseases (such as malignant tumors); 3) Receiving paid caregiving services; 4) Caring for 2 or more people as the primary caregiver. (3) Medical staff: Have been away from clinical work in liver disease for a long time due to various reasons.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Core symptom;Self-management behavior; | — |
Secondary
| Measure | Time frame |
|---|---|
| Level of active self-management;Level of Self-Efficacy in Symptom Management;Perceived level of disease; | — |
Countries
China
Contacts
Public ContactNiyan Huang
The First Affiliated Hospital of Army Medical University
Outcome results
None listed