Fabry disease
Conditions
Interventions
Case series:NA
Sponsors
Beijing Hospital
Eligibility
Sex/Gender
All
Age
18 Years to 100 Years
Inclusion criteria
Inclusion criteria: 1. Age between 18 and 85 years. 2. Patients diagnosed with Fabry disease.
Exclusion criteria
Exclusion criteria: 1. Patients unable to cooperate with clinical data collection and follow-up due to various reasons, such as severe cognitive impairment, deafness, or non-Chinese language proficiency. 2. Patients with an expected survival time of less than 6 months.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Five-year all-cause mortality;Composite endpoint of heart failure, stroke, and kidney transplantation or dialysis; | — |
Secondary
| Measure | Time frame |
|---|---|
| Cardiac death within 1 year;HF readmission within 1 year;Malignant ventricular arrhythmias occurring within 1 year: including recurrent episodes of sustained ventricular tachycardia with hemodynamic instability, ventricular flutter, and ventricular fibrillation; | — |
Countries
China
Contacts
Public ContactYang Jiefu
Beijing Hospital
Outcome results
None listed