Spinal muscular atrophy
Conditions
Interventions
Experimental group:none
Sponsors
Sun Yat-sen Memorial Hospital, Sun Yat-sen University
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: (1) Parents of adolescents aged 9-18y diagnosed with SMA; (2) be the primary caregiver; (3) Primary school or above, able to read and complete the questionnaire; (4) Age =18y; (5) Informed consent and voluntary participation in this study.
Exclusion criteria
Exclusion criteria: (1) Adolescents with other serious chronic diseases other than SMA (congenital heart disease, bronchial asthma, nephrotic syndrome, etc.); (2) Serious complications such as severe systemic infection, severe anemia and cachexia. Parents: (1) have a history of mental illness or are taking antipsychotic drugs; (2) Serious complications such as severe systemic infection, severe anemia and cachexia; (3) complicated with heart, lung, liver, renal insufficiency and other serious chronic diseases; (4) Those who have experienced other major traumatic events within the last six months, including bereavement, serious car accident, cancer diagnosis, etc.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Interview results; | — |
Countries
China
Contacts
Public ContactQian Liu
Sun Yat-sen Memorial Hospital, Sun Yat-sen University
Outcome results
None listed