Life-threatening/limiting Conditions of Paediatric Patients
Conditions
Interventions
Intervention group (Palliative/EOL care provided by CCF (NGOs) and the usual care provided by the public hospital.):None
Non-intervention group (Usual care provided by the public hospital.):None
Non-intervention group (For matching) (Usual care provided by the public hospital.):None
Sponsors
JC School of Public Health and Primary Care, The Chinese University of Hong Kong
Eligibility
Sex/Gender
All
Age
No minimum to 99 Years
Inclusion criteria
Inclusion criteria: The project adopts concurrent mixed-method design consisting of three studies: For Study 1 & Study 3: (1) Major/ Primary caregivers of children who are paediatric patients (age <18) with life-limiting conditions in the 12 selected HA hospitals; (2) Aged 18 or above; (3) Hong Kong residents; (4) Able to read, write and understand Chinese; (5) Able to consent to the study participation; and (6) Mentally or physically capable of response to the interviews. For Study 2: (1) Intervention Group: Children who are paediatric patients (age <18) with life-limiting conditions in the 12 selected HA hospitals with major/ primary caregivers who joined the intervention and consented to join the study. The data retrieval period will be one year from the date of consent by children’s parents/ legal guardians. (2) Non-intervention Group: children who are paediatric patients (age <18) with life-limiting conditions in the 12 selected HA hospitals with major/ primary caregivers who did not join the intervention but consented to join the study. The data retrieval period will be one year from the date of consent by children’s parents/ legal guardians. (3) Non-intervention Group (For matching): children who are paediatric patients (age <18) with life-limiting conditions in the 12 selected HA hospitals with major/ primary caregivers who did not join the intervention (matched cases from HA database for non-intervention cohort matching). The study team would apply to waive the consent of this part because the retrieved data does not contain any personally identifiable information of patients.
Exclusion criteria
Exclusion criteria: For Study 1 & Study 3: (1) Major/ Primary caregivers age = 18 years old at the time of interview; or (4) Mentally or physically incapable of response to the interviews. For Study 2: (1) A diseased child who is Age >= 18 years old at the time of study; or (2) Children who are paediatric patients (age <18) with life-limiting conditions in the 12 selected HA hospitals with major/ primary caregivers who are unable to consent to join the study.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Caregiving burden;Cost effectiveness; | — |
Countries
China
Contacts
Public ContactProf. Eliza Lai-yi Wong
JC School of Public Health and Primary Care, The Chinese University of Hong Kong
Outcome results
None listed