neurodegenerative diseases and neuromuscular diseases
Conditions
Interventions
Group 1:Nurse-led psycho-spiritual intervention: Each session comprises two main parts. First, the therapist takes a supportive–expressive approach in encouraging the open expression of thoughts and e
Group 2:Befriending activity: The sessions will focus on discussion of neutral, everyday topics and events (e.g. hobbies, pets and current affairs) which are of interest to participants and are not la
Sponsors
The University of Hong Kong
Eligibility
Sex/Gender
All
Age
18 Years to 100 Years
Inclusion criteria
Inclusion criteria: 1. Are diagnosed with neurodegenerative disease including multiples sclerosis, Parkinson’s disease, and spinocerebellar ataxia or neuromuscular disease including motor neuron disease, muscular dystrophy, and spinal muscular atrophy; 2. Score >= 8 on the Hospital Anxiety and Depression Scale-Depression subscale (sensitivity and specificity of approximately 0.80); 3. Aged 18 or above; 4. Fluent Cantonese speaker; 5. Able to sign an informed consent form.
Exclusion criteria
Exclusion criteria: 1. Have severe cognitive impairment as indicated by the Abbreviated Mental Test lower than 6 (sensitivity and specificity of 0.94-0.96); 2. Are currently receiving psychotherapy/other behavioural interventions in the preceding six months; 3. Have prior experience in ACT-based intervention; 4. Have other contraindication or severe comorbidity that may limit their full participation (e.g. severe hearing or vision impairment).
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| psychological wellbeing; | — |
Secondary
| Measure | Time frame |
|---|---|
| spiritual wellbeing;meaning in life;symptom burden;psychological flexibility;distress and dying Distress scale;health-related quality of life;Illness representations; | — |
Countries
China
Contacts
Public ContactLily Man Lee CHAN
The University of Hong Kong
Outcome results
None listed