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A study on the construction of an intervention program for children with hemophilia for the transition to adulthood

A study on the construction of an intervention program for preparing children with hemophilia for the transition to adulthood

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
ChiCTR
Registry ID
ChiCTR2300068105
Enrollment
Unknown
Registered
2023-02-07
Start date
2023-02-10
Completion date
Unknown
Last updated
2023-05-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Hemophilia

Interventions

Control group:Routine Care and Follow-up
Intervention group:A Transition Readiness Intervention Program for Children with Hemophilia Based on the Ottawa Model

Sponsors

Children's Hospital of Chongqing Medical University
Lead Sponsor

Eligibility

Sex/Gender
All
Age
12 Years to 18 Years

Inclusion criteria

Inclusion criteria: 1. Meet the diagnosis and treatment standards and classification of each specialty; 2. Aged range from 12 to 18 years; 3. The guardian is informed and agrees to the children's participation in this study; 4. The patient is aware of the diagnosis.

Exclusion criteria

Exclusion criteria: 1. The patient is in the critical stage; 2. Patients with mental disorder, mental abnormality or severe brain function impairment; 3. Hypersensitive chronic patients (patients with abnormal psychological assessment or medical reports of paranoid personality).

Design outcomes

Primary

MeasureTime frame
Adolescent transition readiness;Medication adherence;Hemophilia joint health score;Coping styles of adolescents with chronic diseases;Monthly average number of bleeding events;—

Countries

China

Contacts

Public ContactCui Cui

Children's Hospital of Chongqing Medical University

cuicui17@126.com+86 139 9605 6327

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Feb 4, 2026