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National Longitudinal Cohort of Hematological Diseases/ China Hematology Oncology Pediatric Alliance-Multicenter Childhood Myelodysplastic Syndrome Cohort Study

National Longitudinal Cohort of Hematological Diseases/ China Hematology Oncology Pediatric Alliance-Multicenter Childhood Myelodysplastic Syndrome Cohort Study

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
ChiCTR
Registry ID
ChiCTR2200062615
Enrollment
Unknown
Registered
2022-08-14
Start date
2022-09-01
Completion date
Unknown
Last updated
2023-04-12

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Myelodysplastic syndrome

Interventions

case series:NA

Sponsors

National Clinical Research Center for Blood Diseases, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College
Lead Sponsor

Eligibility

Sex/Gender
All
Age
No minimum to 18 Years

Inclusion criteria

Inclusion criteria: 1. The age of onset is < 18 years old; 2. From January 1, 2011 to December 31, 2021, patients diagnosed with MDS in each enrolled unit, including patients with MDS secondary to congenital diseases or chemotherapy.

Exclusion criteria

Exclusion criteria: 1. The patient himself or his legal guardian does not agree to join the group; 2. The patient with incomplete data or irregular treatment that is difficult to evaluate the curative effect.

Design outcomes

Primary

MeasureTime frame
Remission;Persistence;Relapse;Clonal evolution;overall survival, OS;

Secondary

MeasureTime frame
treatment response rate;

Countries

China

Contacts

Public ContactZhu Xiaofan

National Clinical Research Center for Blood Diseases, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College

xfzhu@ihcams.ac.cn+86 22 23909001

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Feb 4, 2026