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Evaluation of Patient-Reported Outcome Measures in Chinese Spinocerebellar Ataxias Population

Evaluation of Patient-Reported Outcome Measures in Chinese Spinocerebellar Ataxias Population

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
ChiCTR
Registry ID
ChiCTR2200061636
Enrollment
Unknown
Registered
2022-06-29
Start date
2022-06-15
Completion date
Unknown
Last updated
2023-04-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

spinocerebellar ataxia

Interventions

Case series:None

Sponsors

West China Hospital, Sichuan University
Lead Sponsor

Eligibility

Sex/Gender
All
Age
14 Years to 80 Years

Inclusion criteria

Inclusion criteria: Patients with SCA who went to West China Hospital of Sichuan University for treatment from January 1, 2019 to December 31, 2022.

Exclusion criteria

Exclusion criteria: The patient is in an unstable condition (dementia, delirium, etc.) and unable to understand or respond to the questions.

Design outcomes

Primary

MeasureTime frame
Patient-Reported Outcome Measure of Ataxia;—

Secondary

MeasureTime frame
Functional Reaching Test;Five Times Sit to Stand Test;5m series walking time;Modified Barthel Index;Berg Balance Scale;6-minute walk test;Motor Coordination Dysfunction Evaluation Scale;Fall-Resk self-assessment Questionnaire;Instrumental Activity of Daily Living;Timed Up and Go;the SCA Functional Index;EQ-5D European five-dimensional health scale;The gait parameters;—

Countries

China

Contacts

Public ContactQiang Gao

West China Hospital, Sichuan University

gaoqiang_hxkf@163.com+86 18980605992

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Feb 4, 2026