Thalassemia
Conditions
Interventions
Intervention Group (Patients):Application-based Genetic Counseling
Control Group (Patients):Routine Care
Intervention Group (Caregivers):Application-based Genetic Counseling
Control Group (Caregivers):Routine Care
Sponsors
General Hospital of RSUD Ciamis; Fujian Medical University
Eligibility
Sex/Gender
All
Age
13 Years to No maximum
Inclusion criteria
Inclusion criteria: The inclusion criteria for both patients and caregivers were: 1. Inpatients diagnosed with thalassemia; 2. Aged between 13 and 18 years for patients and >18 years for family members or close relatives for caregivers; 3. Capable of using a smartphone with the Android operating system.
Exclusion criteria
Exclusion criteria: The exclusion criteria for both patients and caregivers were: 1. Presence of cognitive impairment (comprehension or expression difficulties); 2. Taking psychotropic medications; 3. Having received other psychotherapies or genetic counseling within the past 3 months; 4. Diagnosed with a chronic illnesses.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Depression;Anxiety;Quality of Life;Patients Satisfaction; | — |
Countries
Indonesia
Contacts
Public ContactHenri Setiawan
Fujian Medical University
Outcome results
None listed