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A cohort study for rare disease of primary dystonia

A cohort study for rare disease of primary dystonia

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
ChiCTR
Registry ID
ChiCTR1800020039
Enrollment
Unknown
Registered
2018-12-12
Start date
2017-09-01
Completion date
Unknown
Last updated
2018-12-18

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Primary dystonia

Interventions

Case series:Nil

Sponsors

West China Hospital, Sichuan University
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Patients with clinical manifestations of involuntary, persistent muscle contraction, distorted, repetitive motion or abnormal posture syndrome, combined with electromyography, genetic testing, imaging and other clinical examinations

Exclusion criteria

Exclusion criteria: Secondary dystonia; disagree with the signing of informed consent; patients who do not agree with clinical follow-up and blood collection

Design outcomes

Primary

MeasureTime frame
The severity of dystonia;Laboratory inspection;

Secondary

MeasureTime frame
Demography;Medical history;Cognition;Anxiety and depression;Quality of life;Sleep;Neuroelectrophysiological indicators;Imaging inspection;

Countries

China

Contacts

Public ContactHuifang Shang

West China Hospital of Sichuan University

hfshang2002@126.com+86 18980602127

Outcome results

None listed

Source: ChiCTR (via WHO ICTRP) · Data processed: Feb 4, 2026