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A study on how genetic counselling supports parents and caregivers of children with autism, intellectual disability, and cerebral palsy in coping, adapting, and feeling more confident in caring for their children

Effect of Genetic Counselling on Preparedness, Resilience and Adaptation of families of children with selected developmental disabilities attending Child Psychiatric Centres-A mixed method study - NIL

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
CTRI
Registry ID
CTRI/2026/06/111984
Enrollment
100
Registered
2026-06-04
Start date
Unknown
Completion date
Unknown
Last updated
2026-06-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Interventions

Intervention1: Genetic counselling: Genetic counselling is a structured intervention provided by the investigator ( who is a licensed genetic counsellor by the Board of Genetic Counselling in India) t

Sponsors

Dr Reena George
Lead Sponsor
Reena George self
Collaborator

Eligibility

Inclusion criteria

Inclusion criteria: Families of children already diagnosed with selected developmental disabilities including Autism spectrum disorder, Inteelectual disability and cerebral palsy Must have an abnormal genetic test report or a completed diagnostic workup Must be willing and able to attend all 12 individual genetic counselling sessions Caregivers must be in the 20 65 years age group whose children aged 1 10 years

Exclusion criteria

Exclusion criteria: Families requiring urgent/emergency services Families with active psychiatric illness Those who are not likely to complete follow-up or sessions

Design outcomes

Primary

MeasureTime frame
preparedness, Resilience,AdaptationTimepoint: 2 weeks , 4weeks and 12 weeks post intervention assessmengt of prepareness, resilience and adpatation—

Secondary

MeasureTime frame
caregiving burden , knowledge , psychological wellbeingTimepoint: 2 weeks, 4 weeks and 12 weeks post intervention—

Countries

India

Contacts

Public ContactReena George

IMHANS

reenaalancheril@gmail.com9745156700

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Jun 29, 2026