None listed
Conditions
Interventions
Intervention1: Nil: Nil
Intervention2: Nil: Nil
Sponsors
Dr Ayesha Rahman
Eligibility
Inclusion criteria
Inclusion criteria: Adults aged 18 years and above with experience in hemophilia care (professional) or caregiving for adolescents with hemophilia, willing to provide written informed consent.
Exclusion criteria
Exclusion criteria: Unwillingness to participate.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Development of a validated realist programme theory with Context-Mechanism-Outcome (CMO) configurations explaining pain management in adolescents with hemophiliaTimepoint: The primary outcome development of a realist programme theory with context-mechanism-outcome configurations is assessed at two sequential time points: at completion of Phase 1 (scoping review and evidence synthesis, approximately July 2026) yielding the initial programme theory, and at completion of Phase 2 (focused group discussions and expert synthesis, approximately November 2026) yielding the final refined and validated programme theory. | — |
Secondary
| Measure | Time frame |
|---|---|
| Scoping review evidence map; stakeholder perspective themes from FGDs; context-sensitive practice recommendationsTimepoint: Mapping of pain management approaches- end of Phase 1 July 2026. Contextual barriers, facilitators, & stakeholder insights on feasibility & acceptability- end of Phase 2 FGDs September to November 2026. Evidence-informed recommendations- end of integrated synthesis phase December 2026 | — |
Countries
India
Contacts
Public ContactDr Ayesha Rahman
Kasturba Medical College, Manipal Academy of Higher Education, Manipal
Outcome results
None listed