Health Condition 1: C910- Acute lymphoblastic leukemia [ALL] Health Condition 2: C920- Acute myeloblastic leukemia Health Condition 3: C925- Acute myelomonocytic leukemia Health Condition 4: C924- Acute promyelocytic leukemia Health Condition 5: C837- Burkitt lymphoma Health Condition 6: C921- Chronic myeloid leukemia, BCR/ABL-positive Health Condition 7: C716- Malignant neoplasm of cerebellum Health Condition 8: C56- Malignant neoplasm of ovary Health Condition 9: C62- Malignant neoplasm of tes
Conditions
Interventions
Intervention1: Nil: Nil
Intervention2: Nil: Nil
Intervention3: Nil: Nil
Sponsors
Dr Shyam Srinivasan
Eligibility
Inclusion criteria
Inclusion criteria: Parent/primary caregiver/or legal guardian of a child aged less than 15 years diagnosed with any type of cancer. The child is currently receiving active treatment or undergoing follow-up at Tata Memorial Centre. Able to understand and communicate in English or a locally prevalent language (e.g., Marathi, Hindi) as assessed by the research team. Able to provide informed consent.
Exclusion criteria
Exclusion criteria: Parent/primary caregiver/or legal guardian with severe cognitive impairment or psychiatric conditions that would preclude informed consent/assent or reliable participation, as determined by the treating physician or research team. Parent/primary caregiver/or legal guardian who are critically ill or in acute distress. Parent/primary caregiver/or legal guardians who decline to participation
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To determine the proportion of parents who are willing to receive research results related to studies involving their child. Timepoint: At baseline | — |
Secondary
| Measure | Time frame |
|---|---|
| To describe parents experiences with & understanding of receiving research results among those whose children have participated in clinical research. Timepoint: At baseline;To assess attitudes & expectations toward receiving study information among parents whose children have not participated in research. Timepoint: At baseline;To compare perceptions, preferences, & concerns regarding research result sharing between participant & non-participant parent groups.Timepoint: At baseline;To evaluate parental preferences related to modality, format, language, frequency, and source of communication of research results.Timepoint: At baseline;To assess the influence of receiving research results on trust in healthcare providers and willingness toward future research participation. Timepoint: At baseline;To identify sociodemographic & clinical factors associated with willingness to receive study results & attitudes toward research participation.Timepoint: At baseline;To explore potential concerns such as fear of emotional distress, misinterpretation of results, & desire to opt-out under certain scenarios. Timepoint: At baseline | — |
Countries
India
Contacts
Public ContactDr Shyam Srinivasan
Tata Memorial Hospital
Outcome results
None listed