Health Condition 1: C50- Malignant neoplasm of breast Health Condition 2: C069- Malignant neoplasm of mouth, unspecified Health Condition 3: C539- Malignant neoplasm of cervix uteri, unspecified
Conditions
Interventions
Intervention1: NIL: NIL
Control Intervention1: NIL: NIL
Sponsors
National Cancer Grid
Eligibility
Inclusion criteria
Inclusion criteria: a) For patients participating in focus group discussions, workshops, cognitive interview and pilot testing 1)Tumor type - breast, cervical, oral 2)Diagnosed within 6 months (Patients who have been diagnosed and/or actively receiving treatment within the health system for up to six month) and their caregivers 3)Representation across centres in India covering five regions (west, east, south, central, north) 4)Representation from urban,rural and hard to reach tribal populations 5)Literate and able to give written informed consent b) For patient caregivers, Policymakers/Doctors/Nurses/Asha workers participating in focus group discussion and indepth interviews 1)Literate 2)Willing to give informed consent
Exclusion criteria
Exclusion criteria: Those experiencing significant side effects from ongoing treatment
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Validity and reliability of the Indian Cancer Stigma Scale- content validity, criterion validity, internal consistency, test retest reliability, inter-rater reliabilityTimepoint: At end of phase 4, 36 months | — |
Secondary
| Measure | Time frame |
|---|---|
| a. Assessment of domains of cancer stigma (perceived, enacted, internalized, structural stigma, stigma by association)Timepoint: During pilot testing and validation phase (up to 36 months);b. Identification of key dimensions of cancer stigma in the Indian contextTimepoint: During qualitative phases (Phase 1 3 with literature review, IDIs, FGDs, cognitive interviews);c. Assessment of variation in stigma across geographic regions, gender, and socio-cultural factorsTimepoint: During pilot testing and validation phase (up to 36 months) | — |
Countries
India
Contacts
Public ContactDr C S Pramesh
Tata Memorial Hospital, Mumbai
Outcome results
None listed