Health Condition 1: Z515- Encounter for palliative care
Conditions
Interventions
Intervention1: Pediatric Palliative Care Support App: Development and pilot testing of a mobile app to enhance communication and support for pediatric palliative care.
The frequency and duration of an
Sponsors
Tata Memorial Hospital
Eligibility
Inclusion criteria
Inclusion criteria: Stage 1: Inclusion Criteria 1.Pediatric oncologists, pediatrician and PPC team members willing to participate 2.Parent of children or children with advanced cancer able to read and understand the appropriate language (English/Hindi) Stage 2 : Inclusion Criteria 1.Patient diagnosed with advanced malignancy. 2.Patients Referred to Pediatric Palliative Care (PPC) 3.Age up to 18 years of age. 4.Access to smartphone and internet
Exclusion criteria
Exclusion criteria: Stage 1 and 2 Exclusion Criteria 1.Not willing to participate.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Number of phone follow-ups or teleconsultations done by PPC team within 24/72 hours of the child filling the assessment form measured by descriptive statisticsTimepoint: Within 24/72 hours of the child filling the assessment form | — |
Secondary
| Measure | Time frame |
|---|---|
| 1.Determine the number of Children who filled out the symptom assessment form measured by descriptive statistics.Timepoint: Time Point 1: Initial assessment (when the first form is filled out). Time Point 2: 1 month after pilot launch (during the 2-month testing phase). Time Point 3: 2 months after pilot launch (end of pilot phase).;2.To analyze the number of times the symptom assessment forms have been filled.Timepoint: Time Point 1: First form submission (baseline). Time Point 2: 1 month after pilot testing begins (to monitor ongoing form completions). Time Point 3: 2 months after pilot testing begins (final number of forms completed by the end of the pilot phase).;3.To Monitor Emergency Contact call trends.Timepoint: Bi-weekly for 2 months after app use begins.;4.To track engagement with educational Materials.Timepoint: Time point 1 : Immediately after the educational content is made available on the app. Time point 2 : 1 month after pilot testing begins (measuring continued engagement) Time Point 3 :2 months after pilot testing begins( final measure of engagement during the 2 month period);5.Number of Children who filled out the symptom assessment form.Timepoint: End of 2 months after enrollment. | — |
Countries
India
Contacts
Public ContactDr Shamali Poojary
Tata Memorial Hospital
Outcome results
None listed