Health Condition 1: D561- Beta thalassemia
Conditions
Interventions
Intervention1: Parent Education Discharge Support Strategies (PEDSS): 1. Guideline for parents (IAP)
2. Nutrition Education
3. Education on symptoms management at home
4. Support for parents and careg
Sponsors
Kabita Mitra
Eligibility
Inclusion criteria
Inclusion criteria: 1.Children diagnosed as Thalassemia by a registered medical practitioner. 2.Children of both the sex. 3.Children aged 7-18 years. 4.Parents of children who can read, write and fully understand Bengali. 5.Children who will attend indoor or outdoor treatment facility during data collection period.
Exclusion criteria
Exclusion criteria: 1. Children with critical conditions such as severe respiratory distress, central nervous system infection, sepsis etc. 2. Children suffering from other diseases such as congenital heart malformation, pulmonary insufficiency etc. 3. Parents and children who are not willing to participate.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Improvement in Hematological parameters, Medication Adherence and Quality of Life.Timepoint: 1 month, 3 months and 6 months | — |
Secondary
| Measure | Time frame |
|---|---|
| NilTimepoint: Not applicable | — |
Countries
India
Contacts
Public ContactKabita Mitra
SUM Nursing College, IMS &SUM Hospital
Outcome results
None listed