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Understanding Families Experiences of Care at the End of Life in a Hospital Setting

Family experience of End-of-Life Care in a tertiary care hospital in India: A 12-month prospective observational study using a self-administered post-bereavement questionnaire

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2026/01/101128
Enrollment
17
Registered
2026-01-14
Start date
Unknown
Completion date
Unknown
Last updated
2026-02-02

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Interventions

Intervention1: Nil: Nil Control Intervention1: Nil: Nil

Sponsors

Prakriya hospitals
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: Adult in-hospital death where the dying phase was anticipated and end of life care was provided. Palliative and/or EOLC input in the last phase of care. Family members: A primary family contact (equal or more than 18 years) reachable by telephone, WhatsApp, or email, and if possible, 1-2 other family members who are willing to participate in the study

Exclusion criteria

Exclusion criteria: Deaths without prior EOLC discussions and documentation. No valid contact information or refusal to participate. Inability to understand the questionnaire language. Failed to be reachable and wishes to withdraw from the study during follow-up after the specified period of time

Design outcomes

Primary

MeasureTime frame
To understand the composite family experience after the patient s death, about the structure, initiation, and helpfulness of end-of-life care practises in a tertiary care hospital Objective assessment of the end-of-life care process and the nature of effect it bears on the family after losing a kith and kin To get a breavement letter feedback to understand if a condolence letter sent to family members provides them adequate support in coping up with the lossTimepoint: A standardised Condolence letter sent at 3 weeks after death A post bereavement questionnare sent to close family members at 6- 8 weeks post death to understand family staisfcation about end of life care practises in the teriary care hospital and to get a breavement letter feedback

Secondary

MeasureTime frame
NilTimepoint: Nil

Countries

India

Contacts

Public ContactDr Rolly Malhotra

Prakriya hospitals

rolly.kakkar@gmail.com9611301206

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 7, 2026