Health Condition 1: C910- Acute lymphoblastic leukemia [ALL]
Conditions
Interventions
Intervention1: Nil: Nil
Intervention2: Nil: Nil
Sponsors
Christian Medical College
Eligibility
Inclusion criteria
Inclusion criteria: 1. Children regardless of their cancer category who were diagnosed with cancer in the year 2021 or after (to provide recency in reflecting on their experiences). 2. Age 12-18 years. The minimum age of 12 is to capture the breadth of life experience they would possess and the maximum age of 18 is according to the legal definition of children according to the Juvenile Justice (Care and Protection of Children) Act 2015 issued by the Government of India (Ministry of Women &Child Development, 2024) 3. Children who are aware of the diagnosis as reported by the caregiver or parent will only be recruited. 4. Children who completed their intensive biomedical treatment in the hospital returned to their own homes and restarted participation in the community including schooling. 5. Children who are receiving (e.g. in the maintenance phase of chemotherapy requiring no long-stay hospital admission or attending yearly follow-up) or have received care from CMC. 6. Children from Kerala or Tamil Nadu who can speak English Tamil or Malayalam will be recruited.
Exclusion criteria
Exclusion criteria: 1. If the healthcare professional and or or caregiver or parent suggest that participation in the study poses a potential risk (e.g. psychological or emotional disturbances) to the child.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To obtain knowledge about occupational participation and social inclusion of children labelled cancer survivors in South India through their perspectives.Timepoint: At one year after initiation of treatment | — |
Secondary
| Measure | Time frame |
|---|---|
| To obtain knowledge about children & childhoods and rethinking equitable & justice oriented health services & inclusion policies for children labelled cancer survivors in IndiaTimepoint: One year after initiation of treatment | — |
Countries
India
Contacts
Public ContactLeni Grace Mathew
Christian Medical College
Outcome results
None listed