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Understanding needs and experience of patients with advanced cancer and their carers who receive palliative care at home

Patient and caregiver needs and perspectives during transition to domiciliary palliative care in advanced cancer: a mixed methods study. - NIL

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2025/08/093634
Enrollment
153
Registered
2025-08-25
Start date
Unknown
Completion date
Unknown
Last updated
2025-11-17

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: C800- Disseminated malignant neoplasm, unspecified

Interventions

Intervention1: Nil: Nil Intervention2: Nil: Nil

Sponsors

Dr. Shadhikha. K
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: FOR PATIENTS: 1.Diagnosis of advanced cancer 2.Patients who will continue to receive palliative care services from the Department of Palliative Medicine, Christian Medical College Vellore 3.Patients who are physically able and have the cognition to participate in interviews /or complete questionnaires. 4.Have the mental capacity to understand details of the study and make informed decision and provide informed consent. FOR CAREGIVERS: 1.Identified as the family carer of the patient. 2.Able and willing to provide informed consent 3.Cognitively and physically able to participate in interviews or complete questionnaires.

Exclusion criteria

Exclusion criteria: FOR PATIENTS: 1.Patients who are physically or cognitively unable to participate in interviews or complete questionnaires. FOR CAREGIVERS: 1.Age below 18 years 2.Professional caregivers or paid home care staff. 3.Cognitively and physically unable to participate in interviews or complete questionnaires.

Design outcomes

Primary

MeasureTime frame
To assess the caregiver burden of family carers of advanced cancer patients at the point of transition to domiciliary palliative care.Timepoint: At baseline—

Secondary

MeasureTime frame
1.To assess the symptom burden of patients with advanced cancer during the transition to domiciliary palliative care. 2.To assess the quality of life of patients with advanced cancer during the transition to domiciliary palliative care. 3.To assess the psychological distress in patients with advanced cancer during the transition to domiciliary palliative care. 4.To assess the distress of the patients & family carers with advanced cancer & the contributing factors during the transition to domiciliary palliative care.Timepoint: At baseline;5.Identify the patient & any caregiver- related determinants that contribute to patient s quality of life or psychological distress during the transition to domiciliary palliative care. 6.To identify any patient-related or caregiver related determinants that contribute to caregiver burden 7.To understand the unmet needs, perspectives, & experiences of family caregivers during the transition to domiciliary palliative care caregivers during the transition to domiciliary palliative care. 8.To understand the unmet needs, perspectives & experiences of patients with advanced cancer during the transition to domiciliary palliative care Timepoint: At baseline—

Countries

India

Contacts

Public ContactDr Jenifer Jeba S

Christian Medical College Vellore

jenifer.jeba@cmcvellore.ac.in9443019383

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026