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Palliative Care in Children with Cystic Fibrosis disease

Assessment of Palliative Care Needs in Children with Cystic Fibrosis: A Cross-sectional Study Conducted at a Tertiary Centre

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2025/06/089540
Enrollment
100
Registered
2025-06-25
Start date
Unknown
Completion date
Unknown
Last updated
2025-07-21

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: J988- Other specified respiratory disorders

Interventions

Intervention1: Nil: Nil

Sponsors

NIL
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: (1) Children aged 6-18 years diagnosed with cystic fibrosis. (2) Parent/guardian consent

Exclusion criteria

Exclusion criteria: (1)Severe cognitive impairment affecting participation. (2)Inability to understand the scales used for the study and complete the questionnaires (3)Parents are unwilling to participate.

Design outcomes

Primary

MeasureTime frame
To assess the palliative care needs of paediatric cystic fibrosis (CF) patients.Timepoint: The total project time duration would be 6 months. month-6: Data Collection Month-7: Data Analysis Month-8,9: Reporting and Data Publication—

Secondary

MeasureTime frame
1. To evaluate the quality of life (QoL) in paediatric cystic fibrosis (CF) patients. 2. To measure symptom burden in paediatric cystic fibrosis (CF) patients Timepoint: AT BASELINE—

Countries

India

Contacts

Public ContactSEEMA MISHRA

AIIMS, NEW DELHI

seemamishra2003@gmail.com9899061105

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026