Health Condition 1: C910- Acute lymphoblastic leukemia [ALL] Health Condition 2: C920- Acute myeloblastic leukemia
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: 1. Children aged 3 -18 years and diagnosed with hematological cancer 2. Parent, caregiver, legal guardian aged over 18 years of selected child. 3. Parent needed to speak Hindi or English. 4. Diagnosed at least 1 month before or within 5 years after the diagnosis., treatment initiated, admitted at least once prior.
Exclusion criteria
Exclusion criteria: 1. Children with cognitive disabilities. 2. Parent, legal guardian, or caregiver who is having any psychiatric illness. 3. Children, parent, legal guardian, or caregiver who are not willing to participate in study.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Evaluate the effectiveness of PEDSS on management of symptoms and complications at home for children with hematological cancer.Timepoint: 1. At discharge 2. 1 months from discharge 3. 2 months from discharge | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. To explore the problems faced by children and parents at home related to management of symptoms and complications for children with hematological cancer. 2. Development and validation of Paediatric Education Discharge Support Services (PEDSS) for children with hematological cancer. 3. Compare PEDSS with standard discharge teaching on management of symptoms and complications at home for children with hematological cancer. 4. To assess the parental perception and feasibility of PEDSS for children with hematological cancer. Timepoint: 1. At discharge 2. 1 months from discharge 3. 2 months from discharge | — |
Countries
India
Contacts
All india institute of medical sciences