Health Condition 1: C801- Malignant (primary) neoplasm, unspecified
Conditions
Interventions
Intervention1: booklet of parent child integrated palliative care model: relaxation technique , yoga therapy , cancer narration
Intervention2: parent child integrated palliative care model: relaxation
Sponsors
All India Institute Of Medical Sciences New Delhi
Eligibility
Inclusion criteria
Inclusion criteria: 1. Pediatric patient diagnosed with cancer. 2. Have advanced cancer, at least 2 week history of progressive, recurrent or non responsive cancer of any type or any brain stem tumor or grade 4 cancer or decision not to pursue further cancer directed therapy. Patient undergoing palliative care or in need of symptom management. 3. parental consent, assent for participation in the study. 4. Patient who can communicate their symptoms. 5. Willingness of both the patient and family to participate in the study. 6. For eligible parents, one of the parents with cancer patients. 7. For eligible parents able to communicate.
Exclusion criteria
Exclusion criteria: 1.Children with non-malignant diseases. 2.Children less than 2 years 3.Patients or parents with severe cognitive or developmental impairments that would prevent the collection of reliable data on symptom burden or quality of life. 4.Children whose family members are unable to participate in the study due to language barriers or other logistical reasons.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1.To reduce symptom burden among paediatric cancer patients . 2.To improve quality of life among paediatrics cancer patients . 3.To improve parental quality of lifeTimepoint: 10 weeks | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. to determine relationship between symptom burden and quality of life among paediatric cancer patients . 2. To find out association of parental quality of life ,symptom burden and quality of life among paediatric cancer patients with selected variables including demographic and clinical variables . 3. To evaluate the user level of satisfaction with PCIPCM among intervention groupTimepoint: 10 weeks | — |
Countries
India
Contacts
Public ContactDr Ujjwal Dahiya
All India Institute of Medical sciences
Outcome results
None listed