Health Condition 1: G122- Motor neuron disease
Conditions
Interventions
Intervention1: Integrated palliative care with standard of care: Palliative care management includes, timely pain management and other symptom management, feeding procedures, physiotherapy, symptomati
Sponsors
DR BRA IRCH, AIIMS, New Delhi
Eligibility
Inclusion criteria
Inclusion criteria: a.All patients clinically diagnosed with ALS presenting to Neurology OP and IPD AIIMS, New Delhi during the study period. b.All consenting adult patients above 18 years of age. c.Patients who can understand hindi/English
Exclusion criteria
Exclusion criteria: a. Patients who do not understand Hindi or English b. Age less than 18 years c.Patients who are in altered mental state or unable to provide relevant clinical history and patients in the process of dying. d.Patients not willing to participate in the study. e.Patients with other CONCOMITANT chronic life limiting illnesses (ESRD, CVA, Metastatic malignancies, ESLD, Cardiac failure)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To assess the efficacy of early integration of palliative care interventions in improving the quality of life at baseline 3 and 6 months compared to standard of careTimepoint: Baseline, 3rd month and 6th month | — |
Secondary
| Measure | Time frame |
|---|---|
| To assess the overall symptom burden in patients and care givers.Timepoint: 0,3,6 months | — |
Countries
India
Contacts
Public ContactDr Sushma Bhatnagar
All India Institute of Medical Sciences, New Delhi
Outcome results
None listed