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Experiences of Non-Speaking Siblings with Autism

Experiences of Siblings of Individuals With Non-Speaking Autism Spectrum Disorder: A Phenomenological Study - NIL

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2024/10/075087
Enrollment
12
Registered
2024-10-10
Start date
Unknown
Completion date
Unknown
Last updated
2024-10-14

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

None listed

Interventions

Intervention1: NIL: NIL Control Intervention1: NIL: NIL

Sponsors

Nivriti Sriram
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: 1.Has a sibling with autism who is non-speaking 2.Be of Indian Origin 3.Is fluent and conversant in English or Tamil

Exclusion criteria

Exclusion criteria: 1.History of developmental disorders, or developmental delays. 2.Severe psychiatric conditions, such as the psychosis spectrum. 3. Neurological conditions 4. Physical disorders/disabilities. 5. Is estranged from their sibling or does not maintain any relationship with their sibling. The nature of the participant’s relationship with their sibling will be assessed in an introductory call, where their involvement in the study will also be debriefed.

Design outcomes

Primary

MeasureTime frame
To gain an in-depth understanding of the unique experiences of those with non-speaking siblings with autism. Timepoint: Baseline

Secondary

MeasureTime frame
Explore concerns and fears present regarding their non-speaking sibling with autismTimepoint: Baseline;Explore how having a sibling with non-speaking autism has shaped their personality, and lives Timepoint: Baseline;Explore how siblings communicate with their non-speaking sibling Timepoint: Baseline;Explore sibling well-being, and how they cope with having a sibling on the spectrum Timepoint: Baseline;Explore the nature of the relationships that typically developing siblings have with their non-speaking sibling with autism Timepoint: Baseline

Countries

India

Contacts

Public ContactIndu Toby

Manipal College of Health Professions

priyanka.krishnan@manipal.edu9895316496

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026