Health Condition 1: C64- Malignant neoplasm of kidney, except renal pelvis Health Condition 2: C40-C41- Malignant neoplasms of bone and articular cartilage Health Condition 3: C81-C96- Malignant neoplasms of lymphoid, hematopoietic and related tissue
Conditions
Interventions
Intervention1: NIL: NIL
Control Intervention1: NIL: NIL
Sponsors
Dr Vani Verma
Eligibility
Inclusion criteria
Inclusion criteria: For Children 1. Children are diagnosed with cancer, aged 2-18 years. 2. At least one month after the cancer diagnosis. 3. Able to communicate and read in either the local language, Kannada or English. For Caregivers: 1. Primary caregivers include father and/or mother, and if parents are not available, grandparents who provide care to children with cancer for a period exceeding one month. 2. Unpaid family caregivers of children with cancer. 3. Aged 18 years or older. 4. Able to communicate and read in either the local language, Kannada or English.
Exclusion criteria
Exclusion criteria: For Children: 1. Children with severe cognitive impairments affecting their ability to participate in the study 2. Being unwilling to give informed consent For Caregivers: 1. Severe cognitive impairments affecting their ability to participate in the study 2. Not being able to communicate verbally or orally 3. Being unwilling to give informed consent.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To explore the association of Palliative Care needs with Quality of Life in Children with Cancer.Timepoint: 24-30 months | — |
Secondary
| Measure | Time frame |
|---|---|
| a. To assess the Quality of Life in children with Cancer using PedsQLTM Cancer Module 3.0. b. To assess the Palliative Care needs in Children with Cancer using PaPaS scale. c. To measure the Caregiver Burden using “The Caregiving Burden Scale for Family Caregivers of Children with Cancers (CBSFC-CC) ? in a pediatric oncology settingTimepoint: 18-24 months to assess the Quality of Life in children with Cancer using PedsQLTM Cancer Module 3.0 and to assess the Palliative Care needs in Children with Cancer using PaPaS scale. 24-30 months to measure the Caregiver Burden using “The Caregiving Burden Scale for Family Caregivers of Children with Cancers (CBSFC-CC) ? in a pediatric oncology setting | — |
Countries
India
Contacts
Public ContactDr Vasudeva Bhat K
Kasturba Medical College, Manipal
Outcome results
None listed