None listed
Conditions
Interventions
Intervention1: NIL: NIL
Control Intervention1: NIL: NIL
Sponsors
Afreen Zulfikar
Eligibility
Inclusion criteria
Inclusion criteria: 1. Mothers providing care for children with osteogenesis imperfecta. 2. Language: Mothers who are fluent in either Malayalam or English. 3. Gender: Male and female children diagnosed with osteogenesis imperfecta. 4. Age of the child: Children aged 3-16 years. 5. Osteogenesis Diagnosis Category: Children who have been diagnosed with OI Type I, III, IV.
Exclusion criteria
Exclusion criteria: 1. Parents who have been diagnosed with osteogenesis imperfecta. 2. Children below the age of 3, and older than 16 years. 3. Caregivers (mothers) with a history of psychiatric or physical illness with prior diagnosis/treatment.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Examining the experiences of caregivers of children with Osteogenesis Imperfecta (OI) is crucial for understanding the challenges they face. 2. This research can lead to the development of targeted interventions and policies to enhance the well-being of both families and caregivers managing OI and shed light on the caregiving burden they bear.Timepoint: 4 weeks | — |
Secondary
| Measure | Time frame |
|---|---|
| NATimepoint: NA | — |
Countries
India
Contacts
Public ContactMs Anagha Srikant Deshmukh
Manipal College of Health Professions (MCHP)
Outcome results
None listed