Health Condition 1: M628- Other specified disorders of muscle
Conditions
Interventions
Control Intervention1: NIL: NIL
Sponsors
Seth GS medical college and hospital
Eligibility
Inclusion criteria
Inclusion criteria: Parents of children with DMD fulfilling the following criteria will be recruited for the study: 1.Male 2.Alive at time of study OR expired in a three-month period preceding enrolment in the study 3.Age: up to 18 years 4.Diagnosis of DMD confirmed by genetic testing. 5.Willing to consent for study 6.Symptomatic brothers of patients who have expired with diagnosis of DMD.
Exclusion criteria
Exclusion criteria: 1. Parent not willing to give consent for the study. 2. Parent with a chronic disease/ physical impairment or those caring for another family member with a chronic disease/ physical impairment. 3. Parent with a psychiatric illness or addictions (e.g., alcoholism, recreational drug use with exception of tobacco or gutka consumption and smoking tobacco and not fulfilling definition as addiction).
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. QoL in parents of patients with DMD 2. Relation of QoL score with MPSS score 3. Identification of factors determining QoLTimepoint: Single time point study at baseline | — |
Secondary
| Measure | Time frame |
|---|---|
| not applicableTimepoint: not applicable | — |
Countries
India
Contacts
Public ContactMamta N Muranjan
Seth G.S. Medical College and K.E.M. Hospital
Outcome results
None listed