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Development and exploring the effect of Paediatric Palliative Care services embedded within the Paediatric Oncology care setting

Embedded Model of Integrated Paediatric Palliative Care in Paediatric Oncology: Development and Testing its Effectiveness. (EMANCIPATION Study) - EMANCIPATION

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2023/12/060697
Enrollment
150
Registered
2023-12-22
Start date
Unknown
Completion date
Unknown
Last updated
2024-01-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: C00-D49- Neoplasms

Interventions

Intervention1: Embedded Pediatric Palliative Care service: Embedded nurse and specialist pediatric palliative care physician led provision of the complex palliative care services Intervention2: Nil: N

Sponsors

Indian Council of Medical Research
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: 1) All children age of 18 years and below, 2) Children diagnosed with cancer, 3)New or Follow up cases of Childhood cancer patients, 4) Children with cancer in both IPD & OPD setting.

Exclusion criteria

Exclusion criteria: 1) Children following up with pediatric oncology services, in cancer remission. 2) Refusal of consent from parents and assent from adolescent children.

Design outcomes

Primary

MeasureTime frame
Identifying Palliative care needs in children with cancer using Paediatric Palliative Care Scale (PaPaS) screening tool. ScoreTimepoint: 1 baseline visit (T0)—

Secondary

MeasureTime frame
Identifying the symptom burden in children with cancer at presentation to paediatric oncologyTimepoint: 1 baseline visit (t0)—

Countries

India

Contacts

Public ContactDr Naveen Salins

Kasturba Medical College, Manipal, Manipal Academy of Higher education, Manipal

naveensalins@gmail.com08202922221

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026