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Pain assessment in children living with hemophilia

Validation of Multidimensional Hemophilia Pain Questionnaire (MHPQ) in Pediatric population (Observational and Longitudinal prospective study)

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
CTRI
Registry ID
CTRI/2023/06/053386
Enrollment
50
Registered
2023-06-01
Start date
Unknown
Completion date
Unknown
Last updated
2023-06-26

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Health Condition 1: D67- Hereditary factor IX deficiency Health Condition 2: D66- Hereditary factor VIII deficiency

Interventions

None listed

Sponsors

None
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: 1. Children of age group 10-17 years with a confirmed diagnosis of Hemophilia. 2. Primary caregivers of children of age group 0-9 years with a confirmed diagnosis of Hemophilia. 3. To assess the parental perception of lifestyle disabilities of young children with hemophilia due to pain.

Exclusion criteria

Exclusion criteria: 1. Patients of hemophilia having other co-existing painful chronic illnesses. 2. Other co-existing factors which can affect pain perception such as fractures, injuries etc. 3. Patients of hemophilia on long term pain relieving medications.

Design outcomes

Primary

MeasureTime frame
Validation of MHPQ in paediatric patients of Hemophilia.Timepoint: 1 year—

Secondary

MeasureTime frame
To score the pain severity and its interference in the day-to-day activities of patients of age group 0-18 yearsTimepoint: 1 year—

Countries

India

Contacts

Public ContactVaishnavi Singh

Moti Lal Nehru Medical College, Prayagraj

anubhashrivastava79@gmail.com9236804326

Outcome results

None listed

Source: CTRI (via WHO ICTRP) · Data processed: Feb 4, 2026